What is the CRUISE study?
The goal of the Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE) study is to learn more about your experiences following cancer treatment and to find out what information healthcare providers gave to you during and after your cancer treatment.
Why is the CRUISE study important?
- There are currently an estimated 15.5 million cancer survivors in the U.S. This number is expected to increase by 70% over the next two decades due to advances in early detection, improved survival rates, and an aging population.
- Cancer survivors face many unique challenges, including late and long-term health effects, emotional and financial difficulties, and an increased risk of developing second cancers. Cancer survivors also experience other serious health conditions, and there is evidence that these challenges are even greater among minority and underserved patients.
- In 2006, the Institute of Medicine (IOM) recommended the implementation of survivorship care plans (SCPs) to facilitate the transition from active treatment to cancer survivorship, from cancer care to primary care.
- The survivorship care plans (SCPs) cover details of cancer treatment, which can be shared with current and future medical providers; and information about available resources related to medical and social survivorship needs. The recommendations called for cancer treatment teams to review survivorship care plans (SCPs) with patients at the conclusion of their cancer treatment.
How are study participants identified?
In California, people who are diagnosed with cancer are identified through the California Cancer Registry (CCR). Since cancer is considered a reportable disease, state law requires that doctors, hospitals and other facilities that diagnose and/or treat cancer patients report to the CCR. The CCR ensures that the rights and confidentiality of all our potential research participants are protected.
Who can participate?
Eligible study participants include both oncology patients and clinicians:
- For Patients- Eligible study participants will include men and women who are over 18 years old and diagnosed with stages I-III breast or colorectal cancer. If you would like to find out if you are eligible, click the "Complete Survey Here" link below to complete the screening questions or select "Email the Study Coordinator" button to the right to request more information.
- For Providers- Eligible study participants include oncology leaders in a health system, front-line clinicians or primary care providers who provide longitudinal care for cancer survivors and are employed/affiliated with one of the Greater Bay Area Cancer Registry (Alameda, Contra Costa, Marin, Monterey, San Benito, San Francisco, San Mateo, Santa Clara, Santa Cruz) healthcare facilities. If you would like to find out if you are eligible, select "Email the Study Coordinator" button to the right to request more information.
How many people will take part in this study?
About 800 people will take part in this study.
How will my privacy be protected?
- All information collected in this study will be used for our research only and will be kept confidential.
- To protect your privacy, you will be assigned a study number and your name will not be associated with your responses.
- Confidential information and details about the study will be kept in a secure database.
- The UCSF Institutional Review Board (IRB) reviews research studies to ensure the protection of study participants.
How long will this study last?
The study will last 5 years. However:
- For Patients- We are asking participants to fill out a one time 30-minute survey.
- For Providers- We are asking participants to complete a 60-minute survey over the phone or in-person at a predetermined location that is convenient for the provider.
Who is funding this study?
This study is funded by the National Cancer Institute (NCI).